Opportunities for healthcare professionals

Version number: Advert HCP, version 1 

Version date: 10/7/23 

Title of the research project: Imagining Better Futures of Health and Social Care with and for People with Energy Limiting Chronic Illnesses 

Researchers: Dr Bethan Evans, Dr Ana Bê Pereira, Dr Morag Rose, Dr Aaliyah Shaikh, Dr Alison Allam, Dr Anna Ruddock, Dr China Mills, Dr Stephanie Davis 

Artists: Julian Gray, Louise Kenward, Mish Green, Khairani Barokka, Khizra Ahmed 

  • Are you a healthcare professional or student who has, or is likely to have, responsibility for people with energy limiting conditions or chronic illnesses (ECL/I)?*
  • Are you over 18, living and working in the UK?
  • Are you interested in how creative methods can help us imagine better futures of health and social care for women and people of marginalised genders? 
  • Would you like to contribute to research on improving training for healthcare professions?

If you answer yes to the above you may be interested in this research which is being carried out by researchers at the University of Liverpool and Liverpool Hope University, in partnership with Chronic Illness Inclusion and Healing Justice London. It is funded by the Arts and Humanities Research Council. 

The aim of this research is to use arts and creative facilitation to listen to and record suggestions for the improvement of health and social care with Energy Limiting Conditions or Chronic Illness (ELC/I). We are facilitating a number of creative workshops for people of marginalised genders (who identify as women, trans men, non-binary, gender queer, intersex, agender or people whose gender identity is outside binary societal gender expectations) with lived experiences of ELC/I.  We want to explore ways for these creative outputs to be used in training and education for healthcare professionals. Therefore, we are also facilitating online workshops for healthcare professional and students.

If you decide to take part, you will be asked to take part in an online workshop facilitated by Healing Justice London. Discussion during the workshop will centre around your experiences as a health care professional in supporting people with ELC/I, including what problems or harms you have seen in the current system, what barriers are there to providing effective support for people with ELC/I, how it feels as a health care professional to support people with ELC/Is for which there are no effective treatments or cures, and what would need to change in the current system to provide more effective support for people with ELC/Is.

For more information, please click here: https://disbeliefdisregard.uk/workshops-hlp-version-2/

To express interest in the project, click here: https://forms.office.com/e/UL1T5bX472

If you have any questions, please contact Principal Investigator Dr Bethan Evans at The University of Liverpool by email bevans@liverpool.ac.uk   

This research has received ethical approval from The University of Liverpool. Participation is voluntary.

*This refers to a range of conditions in which people experience energy impairment and debilitating fatigue. Energy impairment is more than just feeling tired or fatigued after a long day or strenuous activity, it refers to conditions in which energy impairment leads to a loss of function such that everyday, simple activities that many people take for granted (such as getting dressed or washed, eating or sitting) need to be factored in to decisions about daily energy expenditure. People with ELC/I may, but do not always have, diagnoses of conditions including ME/CFS, fibromyalgia, long covid, autoimmune, neurological and musculoskeletal conditions.